Tag: autism

  • Post-Prom Photos

    It couldn't have been more perfect.  A handsome young man and a pretty young girl going to their high school prom.  They didn't know it, but their moms were sitting nearby watching all the dates parade in, then enjoyed a few hours in the lobby restaurant getting updates via text message from the guardian angels on the inside.  From a distance they looked like every other couple, but we know it was much bigger than that.  These are memories we will cherish always – as a family.  How cute are they?

     

    MWSamProm3

    MWSamProm2

    MWSamProm5

    MWSamProm1

    MWSamProm6

    MWSamProm4

    MWSamProm7

    Peter couldn't be with us to see Sam and Brianna as he had to work but he got to see the tuxedo'd Sam before the carriage turned back into a pumpkin.  His prom was three years ago, photos HERE.

  • milestone month

    MW Sam1993

    Look at that sweet face.  Seems like yesterday that I set up the sheets, and wrangled the boys into the linen coat and saddle shoes, then took photos with real black and white film that I actually had developed. 

    Today I will be a photographer again….how many rolls of film would it take to cover this day?  This month?  All the memorable moments will be captured on a small piece of plastic inserted into my camera.  How is that possible?  And how is it possible that this little one will depart in a dapper tux, with a lovely girl, and attend his senior prom?  I am a wreck.  Full of joy but a bag of nerves for this big day.  I was worried the fancy attire would be an issue but Sam tried it on and modeled for me like it was no big deal.  Even the shiny shoes.  I am wagering he might be the first on the dance floor.  Yes, really.  Crossing fingers that the chaperones text me every ten minutes as I sit with Brianna's mom in the hotel bar, anxiously waiting for reports.  It's good to know the insiders.

     

    MWprom2012

    Prom tonight.  Special Olympics track meet next weekend.  Graduation on the 21st.  Milestones that fill us with pride.  And happy tears.  Pass the tissues.

    I'll be back tomorrow with photos!

  • milestone month

    MW Sam1993

    Look at that sweet face.  Seems like yesterday that I set up the sheets, and wrangled the boys into the linen coat and saddle shoes, then took photos with real black and white film that I actually had developed. 

    Today I will be a photographer again….how many rolls of film would it take to cover this day?  This month?  All the memorable moments will be captured on a small piece of plastic inserted into my camera.  How is that possible?  And how is it possible that this little one will depart in a dapper tux, with a lovely girl, and attend his senior prom?  I am a wreck.  Full of joy but a bag of nerves for this big day.  I was worried the fancy attire would be an issue but Sam tried it on and modeled for me like it was no big deal.  Even the shiny shoes.  I am wagering he might be the first on the dance floor.  Yes, really.  Crossing fingers that the chaperones text me every ten minutes as I sit with Brianna's mom in the hotel bar, anxiously waiting for reports.  It's good to know the insiders.

     

    MWprom2012

    Prom tonight.  Special Olympics track meet next weekend.  Graduation on the 21st.  Milestones that fill us with pride.  And happy tears.  Pass the tissues.

    I'll be back tomorrow with photos!

  • special day

    Yesterday was beautiful, in every way.  There had been talk of rain but it held off until today and we enjoyed a breezy sunny morning and afternoon at the track to celebrate ability.  Many thanks to our coaches headed by Mr. Buggey, the staff and student volunteers, and the dozens who made the Special Olymics a memorable event.  It was our first time as participants and I was blown away by the number of people who were involved to make it a really special day.  My heart is brimming after witnessing the pure joy felt by everyone who was there – athletes, families, and the community who made it happen.   Here are some highlights from Sam competing in track and field. 

    MWSONJAPRIL2012

    MWSONJ1

    MWSONJ2

    MWSONJ3

    MWSONJ4

     

  • special day

    Yesterday was beautiful, in every way.  There had been talk of rain but it held off until today and we enjoyed a breezy sunny morning and afternoon at the track to celebrate ability.  Many thanks to our coaches headed by Mr. Buggey, the staff and student volunteers, and the dozens who made the Special Olymics a memorable event.  It was our first time as participants and I was blown away by the number of people who were involved to make it a really special day.  My heart is brimming after witnessing the pure joy felt by everyone who was there – athletes, families, and the community who made it happen.   Here are some highlights from Sam competing in track and field. 

    MWSONJAPRIL2012

    MWSONJ1

    MWSONJ2

    MWSONJ3

    MWSONJ4

     

  • what do you see?

     

    MWlittlethings 

      
    MWSamRecycles 

     

    I've seen this many times.  It's a scene from the back door.  I have passed by this image on the way to do laundry more than once.  I see it and I smile.  I know what this is and who did it. 

    Yesterday I chose to photograph it because I never want to forget it.  Sometimes we need to stop and take the pictures that remind us of the mental notes we carry of everyday life.  This is evidence I will cherish.  Someday we may not be living in this home.  Someday a regular routine may change.  Someday I might wish I had this photo. 

    This is the place at the back door at the top of the basement stairs where we keep a container for the recycling.  Often, even when the bin has been moved to the side of the house or the front curb, I will see a small flattened cardboard item that Sam has left.  He's good that way….knowing where it is supposed to go.  Knowing it should be recycled not thrown out.  As grown-ups we might toss the small box into the trash since the recycling container is missing.  This small gesture reveals alot – it not only says that he pays attention to the rules, it reminds me that he loves band-aids. AND it is a clue we need to get more. 

    On any given day if you are in need of a band-aid you simply go to Sam and he'll gladly share one from his pocket.  It's fun to ask, even if you don't need one, because he loves to be the go-to guy.

    This photo – such a little thing that is meaningless to most, opens up pages of monologue I could write about this son, this family, this life. 

    What photos should you take this week?

  • what do you see?

     

    MWlittlethings 

      
    MWSamRecycles 

     

    I've seen this many times.  It's a scene from the back door.  I have passed by this image on the way to do laundry more than once.  I see it and I smile.  I know what this is and who did it. 

    Yesterday I chose to photograph it because I never want to forget it.  Sometimes we need to stop and take the pictures that remind us of the mental notes we carry of everyday life.  This is evidence I will cherish.  Someday we may not be living in this home.  Someday a regular routine may change.  Someday I might wish I had this photo. 

    This is the place at the back door at the top of the basement stairs where we keep a container for the recycling.  Often, even when the bin has been moved to the side of the house or the front curb, I will see a small flattened cardboard item that Sam has left.  He's good that way….knowing where it is supposed to go.  Knowing it should be recycled not thrown out.  As grown-ups we might toss the small box into the trash since the recycling container is missing.  This small gesture reveals alot – it not only says that he pays attention to the rules, it reminds me that he loves band-aids. AND it is a clue we need to get more. 

    On any given day if you are in need of a band-aid you simply go to Sam and he'll gladly share one from his pocket.  It's fun to ask, even if you don't need one, because he loves to be the go-to guy.

    This photo – such a little thing that is meaningless to most, opens up pages of monologue I could write about this son, this family, this life. 

    What photos should you take this week?

  • blog rewind: it’s a wonderful life

    As I mentioned, this post is brought you thanks to Seth who is hosting a collaborative event of revisiting old entries.  I chose this post because it stands out as the first time I shared something personal about my family life, and it was most likely the first time I hit double digits in comments.  I really felt a sense of connection and the response I got validated it was ok to share all aspects of life as a wife, parent, daughter, sister, friend, and artist….and that exposing ourselves as real people on our blogs is just as important as expressing ourselves as artists. 

    Here it is – probably my wordiest post but this time with bigger photos, and I'm including some related content below the original text (which can be seen with the comments from September 2006 HERE). 

    MWsamorcastory 

    Originally posted September 3, 2006

    Living with AUTISM is a challenge, but it’s wonderful and rewarding.  Many children with Autism thrive on routine.  They depend on it.  Our son Sam is one of those kids.  He sets his mind on how and when things should happen.  Here’s a story where foiled plans became a dream of a lifetime.

    Last year we went to Niagara Falls.  We found out that Marineland, an amusement park with exhibits of many mammals, had Orcas.  Our son Sam has loved Killer Whales since he was about a year old.  I mean, HE LOVES THEM.  The walls in his room are covered in posters, and picture calendars, and we have dozens of Orca toys – plastic, plush, large, small, plus magnets, stickers, pillow cases.  AND did I mention books?  Countless books on whales and dolphins, but mostly Orcas.  Free Willy?  He’s a friend we watch nearly every day.  So off we went to Marineland on Thursday, August 16, 2005.

     

    MWsamorca1 

     

    Once in the park we headed straight for Friendship Cove, home of 4 Orcas.  I can’t tell you how excited we all were to watch Sam’s face as he saw, for the first time in his life, a real Killer Whale.  It was a moment to remember, followed by many more that weekend.  LAST year you could purchase tickets to stand with the trainer to feed and pet an Orca.  Yeah, we all did it – more than once.  After a full day of fun with the family at the park Sam and I returned for a second day – 9 hours just standing at the tanks, watching the whales.  Sam was in heaven.  “Goodbye whales, see you next year”.  From the day we departed Canada Sam started talking about returning on Thursday, August 17, 2006.  If you know a child with Autism, you know that you had to talk about the upcoming trip daily, like 20 times a day.

     

    MWsamorca2 

     

    Fast forward to this past August.  Sam was ready, wearing the same shirt as last year so the whales would recognize him.  His routine was working up until we got to Friendship Cove – no more ticket sales for feeding the whales.  Foiled!  The activity was replaced with a new Splash Show.  Sure, the Splash Show was fantastic, fascinating, but I could see the despair and confusion on my sweet boy’s face.   We stayed for two shows, took lots of photos and video, saw the rest of the park, went on rides, and returned to say good bye to the whales.  Sam and I returned again for a second day.  Didn’t take the video camera as I had enough footage, right?  Bad idea.  So we are there, planted into position as we were last year, to spend the day watching the whales swim around their wide open tanks.  You are literally two feet away from these beautiful mammals.  The Splash Show is every hour and half – so people start filling into the area ten minutes before show time, then disperse twenty minutes later, soaking wet, after the show.  The trainers notice we are there, and still there, and again, still there.  We talk with one of the attendants – he asks Sam about the pile of books he’s carrying.  This young man, Nicholas, bless his heart, cued in that Sam is no ordinary child, and tried to keep him engaged in conversation.  One thing was obvious to Nicholas – Sam ADORES the whales.  THEN, just prior to the next Splash Show, the “host” of the event, Sean, came over to talk with Sam.  I could feel myself leaving my body  – you know that kind of moment you have when something REALLY GOOD is happening and time stands still and you can barely speak and the tears flood down your face.  Sean tells Sam – I could really use a helper for the show.  Do you think you could help me?  WHAT DID HE JUST SAY?  Dear God, THANK YOU.  If I could have felt my legs at that moment I would have dropped to my knees.

     

    MWsamorca5  

     

    The show begins.  Mike and Kendra, the whale trainers, introduce themselves to this hysterical mom, with winks and smiles, KNOWING, knowing.  Sean is at the microphone, introduces Sam Ward from NJ…..and Sam, who has memorized this show, mimics the trainers.  He knew what to do.  He knew the act.  They got such a kick out of it.  Sam was not afraid in the least to be in front of a HUGE crowd.  He directed the whales to do their tricks.  NEVER in my wildest dreams did I ever expect that Sam would have the chance of a lifetime.  All credit goes to Nicholas, who had the insight, and Sean, Mike, and Kendra, who had the hearts, to give this special boy a very special day.  Warm hearted thanks to our Marineland friends.  I know they feel rewarded, because you just get that from our Sam. 

     

    MWsamorca4 

     

    MWsamorca8

     

    Sam stayed behind the barricade with the trainers after the show.  The two whales, mother and daughter, were still floating near the trainer area,  – waiting, watching.  Sam opened his books to show them the Orca pictures.  Page after page.  The whales didn’t swim away.  Sam read to them.  Sam had observed everything they did in their “free time”, and he especially loved when they stuck their tongues out.  So Sam sticks his tongue out at the whales and they mimicked him!  The hour and half between shows flew by and Sam was honorary trainer for one more show. 

     

    MWsamorca3 

     

    Imagine my husband’s reaction when he came to pick us up outside the park at the end of the day!  Thank goodness I had my digital camera and could show him and the kids all the proof that we were the luckiest souls on earth that day.  Of course I wish they had been with us, but if they were, would it have all happened like it did?  Maybe.  Maybe not.  And Thursday, August 16, 2007?  You know where I’ll be!

     

    MWsamorca6 

     

    MWsamorca9 

     

    MWsamorca11 

     

    MWsamorca10 

     

    I uploaded a very short video clip of the event HERE.  In addition to all the heartfelt responses from readers there was a really cool comment that came from Nicholas, who was the catalyst for the dream day.  I also heard from a reader who suggested I send the story to Chicken Soup for the Soul as they had an open call for Special Needs themed tales.  We made it in!!  (with a photo too!)

     

    MWrockstarsam 

     

    We went back again to see our friends, the trainers and the whales, at Marineland in 2007 but we haven't been back since.  If I had been on the ball with getting passports we would be going this summer.  They'll be seeing us again, you can be sure of that.  And the memories of our visits will forever reside in our hearts.

     

    MWsamorca12 

     

    Thanks for indulging me in a repost of this story.  To see more revisits by other bloggers check in with Seth.

  • blog rewind: it’s a wonderful life

    As I mentioned, this post is brought you thanks to Seth who is hosting a collaborative event of revisiting old entries.  I chose this post because it stands out as the first time I shared something personal about my family life, and it was most likely the first time I hit double digits in comments.  I really felt a sense of connection and the response I got validated it was ok to share all aspects of life as a wife, parent, daughter, sister, friend, and artist….and that exposing ourselves as real people on our blogs is just as important as expressing ourselves as artists. 

    Here it is – probably my wordiest post but this time with bigger photos, and I'm including some related content below the original text (which can be seen with the comments from September 2006 HERE). 

    MWsamorcastory 

    Originally posted September 3, 2006

    Living with AUTISM is a challenge, but it’s wonderful and rewarding.  Many children with Autism thrive on routine.  They depend on it.  Our son Sam is one of those kids.  He sets his mind on how and when things should happen.  Here’s a story where foiled plans became a dream of a lifetime.

    Last year we went to Niagara Falls.  We found out that Marineland, an amusement park with exhibits of many mammals, had Orcas.  Our son Sam has loved Killer Whales since he was about a year old.  I mean, HE LOVES THEM.  The walls in his room are covered in posters, and picture calendars, and we have dozens of Orca toys – plastic, plush, large, small, plus magnets, stickers, pillow cases.  AND did I mention books?  Countless books on whales and dolphins, but mostly Orcas.  Free Willy?  He’s a friend we watch nearly every day.  So off we went to Marineland on Thursday, August 16, 2005.

     

    MWsamorca1 

     

    Once in the park we headed straight for Friendship Cove, home of 4 Orcas.  I can’t tell you how excited we all were to watch Sam’s face as he saw, for the first time in his life, a real Killer Whale.  It was a moment to remember, followed by many more that weekend.  LAST year you could purchase tickets to stand with the trainer to feed and pet an Orca.  Yeah, we all did it – more than once.  After a full day of fun with the family at the park Sam and I returned for a second day – 9 hours just standing at the tanks, watching the whales.  Sam was in heaven.  “Goodbye whales, see you next year”.  From the day we departed Canada Sam started talking about returning on Thursday, August 17, 2006.  If you know a child with Autism, you know that you had to talk about the upcoming trip daily, like 20 times a day.

     

    MWsamorca2 

     

    Fast forward to this past August.  Sam was ready, wearing the same shirt as last year so the whales would recognize him.  His routine was working up until we got to Friendship Cove – no more ticket sales for feeding the whales.  Foiled!  The activity was replaced with a new Splash Show.  Sure, the Splash Show was fantastic, fascinating, but I could see the despair and confusion on my sweet boy’s face.   We stayed for two shows, took lots of photos and video, saw the rest of the park, went on rides, and returned to say good bye to the whales.  Sam and I returned again for a second day.  Didn’t take the video camera as I had enough footage, right?  Bad idea.  So we are there, planted into position as we were last year, to spend the day watching the whales swim around their wide open tanks.  You are literally two feet away from these beautiful mammals.  The Splash Show is every hour and half – so people start filling into the area ten minutes before show time, then disperse twenty minutes later, soaking wet, after the show.  The trainers notice we are there, and still there, and again, still there.  We talk with one of the attendants – he asks Sam about the pile of books he’s carrying.  This young man, Nicholas, bless his heart, cued in that Sam is no ordinary child, and tried to keep him engaged in conversation.  One thing was obvious to Nicholas – Sam ADORES the whales.  THEN, just prior to the next Splash Show, the “host” of the event, Sean, came over to talk with Sam.  I could feel myself leaving my body  – you know that kind of moment you have when something REALLY GOOD is happening and time stands still and you can barely speak and the tears flood down your face.  Sean tells Sam – I could really use a helper for the show.  Do you think you could help me?  WHAT DID HE JUST SAY?  Dear God, THANK YOU.  If I could have felt my legs at that moment I would have dropped to my knees.

     

    MWsamorca5  

     

    The show begins.  Mike and Kendra, the whale trainers, introduce themselves to this hysterical mom, with winks and smiles, KNOWING, knowing.  Sean is at the microphone, introduces Sam Ward from NJ…..and Sam, who has memorized this show, mimics the trainers.  He knew what to do.  He knew the act.  They got such a kick out of it.  Sam was not afraid in the least to be in front of a HUGE crowd.  He directed the whales to do their tricks.  NEVER in my wildest dreams did I ever expect that Sam would have the chance of a lifetime.  All credit goes to Nicholas, who had the insight, and Sean, Mike, and Kendra, who had the hearts, to give this special boy a very special day.  Warm hearted thanks to our Marineland friends.  I know they feel rewarded, because you just get that from our Sam. 

     

    MWsamorca4 

     

    MWsamorca8

     

    Sam stayed behind the barricade with the trainers after the show.  The two whales, mother and daughter, were still floating near the trainer area,  – waiting, watching.  Sam opened his books to show them the Orca pictures.  Page after page.  The whales didn’t swim away.  Sam read to them.  Sam had observed everything they did in their “free time”, and he especially loved when they stuck their tongues out.  So Sam sticks his tongue out at the whales and they mimicked him!  The hour and half between shows flew by and Sam was honorary trainer for one more show. 

     

    MWsamorca3 

     

    Imagine my husband’s reaction when he came to pick us up outside the park at the end of the day!  Thank goodness I had my digital camera and could show him and the kids all the proof that we were the luckiest souls on earth that day.  Of course I wish they had been with us, but if they were, would it have all happened like it did?  Maybe.  Maybe not.  And Thursday, August 16, 2007?  You know where I’ll be!

     

    MWsamorca6 

     

    MWsamorca9 

     

    MWsamorca11 

     

    MWsamorca10 

     

    I uploaded a very short video clip of the event HERE.  In addition to all the heartfelt responses from readers there was a really cool comment that came from Nicholas, who was the catalyst for the dream day.  I also heard from a reader who suggested I send the story to Chicken Soup for the Soul as they had an open call for Special Needs themed tales.  We made it in!!  (with a photo too!)

     

    MWrockstarsam 

     

    We went back again to see our friends, the trainers and the whales, at Marineland in 2007 but we haven't been back since.  If I had been on the ball with getting passports we would be going this summer.  They'll be seeing us again, you can be sure of that.  And the memories of our visits will forever reside in our hearts.

     

    MWsamorca12 

     

    Thanks for indulging me in a repost of this story.  To see more revisits by other bloggers check in with Seth.

  • sensory sensitive

    Check out this article written by Caitlin Reiss, daughter of Sam's teacher, our friend Maureen:

    MWsensorysensitive1 

    How cool is that?  To see the article CLICK HERE. For a list of theaters offering sensory-friendly showings, visit THIS courtesy of the Autism Society of America.  Bravo!!

    Just back from Minnesota where I had a terrific visit with family and friends.  I thank you for all the comments about the Book of Love, and a heartfelt thanks to the participants.  I shared it with my parents and they were just as moved as I was to feel the love you have surrounded us with.  xo